Eisenmenger Quality Enhancement Research Initiative (QuERI) is a multi-center, observational, US-based longitudinal program, with enrollment of consecutive Eisenmenger patients who meet enrollment. Patient data will be collected prospectively for three years. Individual physician feedback will be provided on data collected with the purpose of improving the management of patients - quality enhancement research initiative (QuERI) process.
Approximately 200 male and female adult patients with a history of Eisenmenger will be recruited from approximately 50 cardiology practices over a period of 18 months and will be followed up every six months for the period of three years. Consecutive patients in each practice meeting inclusion and exclusion criteria should be considered for the study. Participating sites will be asked to maintain a screening log to identify which inclusion or exclusion criteria was not met thus excluding them from the study.
Pulmonary Arterial HypertensionEisenmenger
You can join if…
Open to people ages 18 years and up
Male and female patients
Diagnosis of Eisenmenger syndrome based on right heart catheterization data
Right to Left intra-cardiac shunting
Need for comprehensive management according to guidelines and peer-reviewed evidence
Ability and desire to execute the consent for follow up
You CAN'T join if...
Poor mental function, drug, or substance (e.g.,alcohol) abuse, or unstable psychiatric illness, which, in the opinion of the investigator, may interfere with optimal participation in the study
Prior inclusion in this program
University of California, San Francisco San Francisco, California, 94143-0214, United States
Centre for Adult Congenital Heart Disease at California Pacific San Francisco, California, 94115, United States
Berkeley Cardiovascular Medical Group Oakland, California, 94609, United States
Lucile Packard Children's Hospital Palo Alto, California, 94303, United States
University of Southern California Adult Congenital Heart Disease Care Program Los Angeles, California, 90033, United States
Harbor - UCLA Medical Center - Adult Congenital Heart Disease Program - Division of Cardiology Torrance, California, 90502, United States
Ahmanson / UCLA Adult Congenital Heart Disease Center Los Angeles, California, 90095, United States
Children's Heart Center Nevada Las Vegas, Nevada, 89109, United States