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Lewy Body Disease clinical trials at UCSF
2 in progress, 1 open to new patients

  • More Than a Movement Disorder: Applying Palliative Care to Parkinson's Disease

    open to eligible people ages 18–105

    This is a two-center (University of Colorado, University of California San Francisco) community-based comparative effectiveness study of outpatient palliative care for Parkinson's disease (PD) and related disorders (progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), multiple systems atrophy (MSA), Lewy Body Dementia (LBD). It will utilize a randomized stepped-wedge design to compare patient and caregiver outcomes between usual care in the community versus usual care augmented by palliative training and telemedicine support to provide other resources (e.g. social work).

    San Francisco, California and other locations

  • Care Ecosystem: Navigating Patients and Families Through Stages of Care

    Sorry, in progress, not accepting new patients

    This is a 3 year clinical trial evaluating the benefits of a program that supports model care for patients with dementia and their family caregivers. Subjects will be recruited from several sites in San Francisco. Subjects determined to be eligible will be consented and randomized into one of two groups. Two thirds of patients will be enrolled into Navigated Care that provides them with assistance in meeting important benchmarks in their care, for example completion of legal and financial planning and strategies for minimizing caregiver burden. One third of patients will be enrolled to a control group, entitled Survey of Care. Outcomes include quality of life, health care utilization, caregiver burden, and satisfaction with care.

    San Francisco, California and other locations