This study is not yet accepting patients

Patient Portal and Navigation Program in Providing Information for Asian American Cancer Patients

a study on CaregiversMalignant NeoplasmPhysicianColorectal CancerLiver CancerLung Cancer

Summary

for people ages 21 years and up (full criteria)
healthy people welcome
at San Francisco, California and other locations
study started
estimated completion
Tung T Nguyen

Description

Summary

This phase I/II trial studies how well patient portal and navigation program work in providing information for Asian American cancer patients. Patient portal and navigation program may help to improve the care provided to Asian American cancer patients.This study is offered in the following languages in addition to English: Chinese (Cantonese or Mandarin) and Vietnamese.

Official Title

The Patient Cancer OUtreach, Navigation, Technology, and Support (Patient COUNTS) Project: Addressing Care for Asian Americans With Cancer

Details

PRIMARY OBJECTIVES:

  1. Identify Asian American adults newly diagnosed with colorectal, liver, or lung cancer using a population-based cancer registry.

II. Conduct outreach to these patients to let them know about the availability of information on these cancers, the Patient Cancer OUtreach, Navigation, Technology and Support (COUNTS) web portal, and the Patient COUNTS patient navigation program.

III. Provide patient navigation either virtually or in-person.

OUTLINE:

Patients attend focus groups to help develop patient portal and navigation program. Patients use in-person navigation program. In phase II, patients use an online portal to access navigation program and may choose to have online/?virtual? navigation support or in-person navigation support. Patients also complete data collection and surveys over 15 minutes via web portal at baseline, 3 months, and 6 months and user experience survey at end of program participation.

Keywords

CaregiverMalignant NeoplasmPhysicianStage I Colorectal Cancer AJCC v8Stage I Liver CancerStage I Lung Cancer AJCC v8Stage IA1 Lung Cancer AJCC v8Stage IA2 Lung Cancer AJCC v8Stage IA3 Lung Cancer AJCC v8Stage IB Lung Cancer AJCC v8Stage II Colorectal Cancer AJCC v8Stage II Liver CancerStage II Lung Cancer AJCC v8Stage IIA Colorectal Cancer AJCC v8Stage IIA Lung Cancer AJCC v8Stage IIB Colorectal Cancer AJCC v8Stage IIB Lung Cancer AJCC v8Stage IIC Colorectal Cancer AJCC v8Stage III Colorectal Cancer AJCC v8Stage III Liver CancerStage III Lung Cancer AJCC v8Stage IIIA Colorectal Cancer AJCC v8Stage IIIA Lung Cancer AJCC v8Stage IIIB Colorectal Cancer AJCC v8Stage IIIB Lung Cancer AJCC v8Stage IIIC Colorectal Cancer AJCC v8Stage IIIC Lung Cancer AJCC v8Lung NeoplasmsColorectal NeoplasmsLiver NeoplasmsNeoplasmsPatient Navigation ProgramQuality-of-Life AssessmentSurvey Administration

Eligibility

You can join if…

Open to people ages 21 years and up

  • FOR INTERVIEWS AND FOCUS GROUPS: Cancer patients: Self-identifies as Asian American, lives in San Francisco, speaks English, Mandarin, Cantonese, or Vietnamese, has a history of cancer of any kind
  • FOR INTERVIEWS AND FOCUS GROUPS: Caregivers: any person who has provided care to an Asian American cancer patient
  • FOR INTERVIEWS AND FOCUS GROUPS: Health professionals: physicians and other health professionals who provide care to Asian American patients with cancer
  • FOR PILOT AND FULL IMPLEMENTATION: Self-identifies as Asian American, lives in San Francisco, speaks English, Mandarin, Cantonese, or Vietnamese, has stage I-III colorectal, lung, or liver cancer, has not yet undergone treatment
  • FOR PILOT AND FULL IMPLEMENTATION: Is willing to stay in the study for six months

You CAN'T join if...

  • Any medical or psychological conditions precluding informed consent

Locations

  • UCSF Medical Center-Mount Zionnot yet accepting patients
    San FranciscoCalifornia94115United States
  • UCSF Medical Center-Mission Baynot yet accepting patients
    San FranciscoCalifornia94158United States

Lead Scientist

  • Tung T Nguyen
    Dr. Nguyen is the Stephen J. McPhee, MD Endowed Chair in General Internal Medicine and Professor of Medicine at the University of California, San Francisco (UCSF). A general internist with a large panel of Asian American patients, Dr. Nguyen teaches medical students and residents about medicine, health disparities, and community-based participatory research (CBPR).

Details

Status
not yet accepting patients
Start Date
Completion Date
(estimated)
Sponsor
University of California, San Francisco
ID
NCT03867916
Study Type
Interventional
Last Updated