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Acute Intermittent Porphyria clinical trials at UCSF

1 research study open to eligible people

Acute intermittent porphyria is a rare genetic disease that causes stomach pain and nerve problems. UCSF is leading a long study that records symptoms, hospital visits, and pregnancy outcomes for people with porphyria. UCSF is gathering medical and lab records over time.

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  • Longitudinal Study of the Porphyrias

    open to all eligible people

    The objective of this protocol is to conduct a longitudinal multidisciplinary investigation of the human porphyrias including the natural history, morbidity, pregnancy outcomes, and mortality in people with these disorders.

    San Francisco, California and other locations

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