Acute Intermittent Porphyria clinical trials at UCSF
1 research study open to eligible people
Acute intermittent porphyria is a rare inherited disease that causes sudden belly pain, nerve symptoms, and dark urine. UCSF is running a long-term study that tracks health, complications, and pregnancy outcomes in people with porphyria. UCSF is collecting medical records, symptoms, and biological samples over time.
Longitudinal Study of the Porphyrias
open to all eligible people
The objective of this protocol is to conduct a longitudinal multidisciplinary investigation of the human porphyrias including the natural history, morbidity, pregnancy outcomes, and mortality in people with these disorders.
San Francisco, California and other locations
Our lead scientists for Acute Intermittent Porphyria research studies include Bruce Wang, MD.
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