Neurologic Disorder clinical trials at UCSF

1 research study open to eligible people

Neurologic disorders are problems with the brain or nerves. UCSF is conducting a study on Rett syndrome, focusing on people with specific genetic changes. This study tracks their health to learn more about the disorder.

Showing trials for

  • Rett Syndrome Registry

    open to eligible people ages 0-99

    The Rett Syndrome Registry is a longitudinal observational study of individuals with MECP2 mutations and a diagnosis of Rett syndrome. Designed together with the IRSF Rett Syndrome Center of Excellence Network medical directors, this study collects data on the signs and symptoms of Rett syndrome as reported by the Rett syndrome experts and by the caregivers of individuals with Rett syndrome. This study will be used to develop consensus based guidelines for the care of your loved ones with Rett syndrome and to facilitate the development of better clinical trials and other aspects of the drug development path for Rett syndrome.

    Oakland, California and other locations

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