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Porphyria clinical trials at UCSF

1 research study open to eligible people

Porphyria is a rare disease related to heme production that can cause skin and nerve problems. UCSF is investigating porphyria through long-term studies to better understand its effects on health. Researchers are looking at aspects like the natural history of the disease and outcomes in pregnant patients.

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  • Longitudinal Study of the Porphyrias

    open to all eligible people

    The objective of this protocol is to conduct a longitudinal multidisciplinary investigation of the human porphyrias including the natural history, morbidity, pregnancy outcomes, and mortality in people with these disorders.

    San Francisco, California and other locations

Our lead scientists for Porphyria research studies include .

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