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Porphyria clinical trials at UCSF

1 research study open to eligible people

Porphyria is a group of rare genetic disorders that affect the nervous system or skin. UCSF is conducting a study on the long-term effects of these disorders, including problems they cause and outcomes in pregnancy. This trial is a detailed look at the various aspects of porphyrias.

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  • Longitudinal Study of the Porphyrias

    open to all eligible people

    The objective of this protocol is to conduct a longitudinal multidisciplinary investigation of the human porphyrias including the natural history, morbidity, pregnancy outcomes, and mortality in people with these disorders.

    San Francisco, California and other locations

Our lead scientists for Porphyria research studies include .

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