Summary

Location
at Oakland, California and other locations
Dates
study started
completion around

Description

Summary

The TSC Biosample Repository collects and stores samples of blood, DNA, and tissues that scientists can request to use in their research. The samples we collect are all linked to clinical data in the TSC Natural History Database. The TSC Natural History Database captures clinical data to document the impact of the disease on a person's health over his or her lifetime. This data may be collected retrospectively or prospectively.

Official Title

TSC Alliance Tuberous Sclerosis Complex (TSC) Biosample Repository and Natural History Database

Details

Keywords

Tuberous Sclerosis, Lymphangioleiomyomatosis, Sclerosis, Phlebotomy, Buccal (cheek) swab, Genetic Testing, Tissue donation after routine clinical procedure

Eligibility

You can join if…

You CAN'T join if...

Locations

  • Jack & Julia Center for TSC, Oakland Children's Hospital and Research Center currently not accepting new patients, but might later
    Oakland California United States
  • University of California Los Angeles accepting new patients
    Los Angeles California 90095 United States
  • Texas Scottish Rite Hospital for Children accepting new patients
    Dallas Texas United States

Details

Status
accepting new patients at some sites,
but this study is not currently recruiting here
Start Date
Completion Date
(estimated)
Sponsor
National Tuberous Sclerosis Association
Links
TSC Alliance Webpage for Biosample Repository and Natural History Database
ID
NCT05676099
Study Type
Observational [Patient Registry]
Participants
Expecting 5000 study participants
Last Updated