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Eligibility
for people ages 55 years and up
Location
at San Francisco, California
Dates
study started
estimated completion:
Principal Investigator
Deborah E Barnes

Description

Summary

The objective of this proposal is to test whether a multi-media website (www.prepareforyourcare.org) that is focused on preparing older adults for communication and medical decision making can help people engage in advance care planning.

Details

PREPARE is a website (www.prepareforyourcare.org) that teaches patients how to identify what is most important in life, how to communicate their preferences to clinicians and loved ones, and how to make informed decisions. It is written at a 5th grade level and includes voice-overs of text and closed captioning of videos that model advance care planning behaviors. The goal of this proposal is to test the efficacy of PREPARE plus an easy-to-read advance directive, versus an advance directive alone, to improve patient engagement in multiple advance care planning behaviors including discussions with surrogate decision makers and clinicians in addition to advance directive completion. The investigators will also determine whether PREPARE can empower and activate patients within clinical encounters with their clinicians and help to decrease health disparities in advance care planning.

Keywords

Chronic Disease Advance care planning Aging Health communication Health literacy Medical decision making primary care vulnerable population chronic illness

Eligibility

You can join if…

Open to people ages 55 years and up

  • English-speaking older adults (≥55 years)
  • ≥ 2 chronic illnesses determined by International Classification of Diseases-9(ICD-9) codes
  • ≥ 2 visits with an outpatient primary care clinician at San Francisco General Hospital in the past year
  • ≥2 additional outpatient/inpatient visits to San Francisco General Hospital in the past year

You CAN'T join if...

  • deaf, blind, or demented as determined by ICD-9 codes
  • too mentally or physically ill to participate as determined by their clinicians
  • Moderate or severe cognitive impairment as determined by the Short Portable Mental Status Questionnaire (SPMSQ), and mild cognitive impairment as determined by the SPMSQ plus an abnormal Mini-Cog
  • self-reported poor vision and inability to see the words on a newspaper
  • lack of a telephone
  • traveling or moving out of the area for ≥3 months during the study follow- up period

Location

Details

Status
in progress, not accepting new patients
Start Date
Completion Date
(estimated)
Sponsor
University of California, San Francisco
Links
PREPARE
ID
NCT01990235
Lead Scientists
Rebecca Sudore
Dean Schillinger
Deborah E Barnes
Study Type
Interventional
Last Updated
July 18, 2016